In a world where disease burdens are worsening, some parents have turned to alternative therapies with little to no help from the medical community. While we are not allowed to administer treatment protocols for HDC helminth therapy, Salisbury Pediatric Associates believes in open access to literature as it already exists. After speaking with Dr. William Parker, a helminth researcher at Duke University, we felt compelled to share his open access research of self reported treatment outcomes. The use of these therapies has been primarily focused on pediatric neurobehavioral disorders, allergic disease, autoimmune disease and inflammatory conditions. Based on current literature with self treating individuals, the success rate is quite high compared to a very low side effect risk. “Based on available data, Parker estimates that the chance of having a very favourable reaction to HDCs compared to a very negative reaction is about 25 to 1.”

This is what is currently posted on HelminthTherapy wiki about effects:

A considerable number of cases of paediatric use of HDCs were reported to the Duke team, and the quality and quantity of adverse side effects was different in this population than in the adult population. Most paediatric individuals using helminths in the Duke sociomedical studies were attempting to treat neuropsychiatric disorders (for example, ADHD associated with autism), which heavily biases the available information. Based on physicians’ reports to the Duke team, most individuals with autism experienced a slight but transient increase in hyperactivity following self-treatment.[5] This was not considered a reason to discontinue therapy by most individuals, but rather was considered an early indicator that the HDCs were having a beneficial effect. (Similar observations were made with TSO use in the paediatric population.)
More troublesome adverse reactions were noted in about 1% of the paediatric population taking HDCs and were considered cause for cessation of therapy. Adverse reactions were of two types:[5] severe gastric pain associated with documented colonisation (adult helminths growing in the gut), and worsening of behavioral symptoms. These more troublesome effects were relieved by treatment with anthelminthic drugs. Behaviour usually returned to baseline in these cases within one to three weeks of treatment, based on physician’s reports to the Duke team. Based on available data, Parker estimates that the chance of having a very favourable reaction to HDCs compared to a very negative reaction is about 25 to 1 (favouring a very positive reaction) in the paediatric population. However, again, this number is based on experiences of self-treaters with neuropsychiatric disorders and was obtained using a sociomedical study design that is semi-quantitative in nature. In the adult population, the Duke study suggests that the chances of a very negative reaction may be much less than in the paediatric population, but insufficient numbers have been obtained to reach any conclusions. (William Parker, personal communication February 2017 commenting on over 700 cases of self-treatment with HDCs.)

5. Practices and outcomes of self-treatment with helminths based on physicians' observations.

 

Typical Dosage Optimization Routine Handout